Level of burden on the caregivers of people with severe disabilities

  • Yenisel Rodríguez-Delgado Universidad Nacional de Loja (UNL). Loja, Ecuador.
  • Betti del Cisne Reyes-Masa Profesora de la Carrera de Trabajo Social de la Universidad Nacional de Loja (UNL). Loja, Ecuador.
  • Celsa Beatriz Carrión-Berrú Profesora de la Carrera de Medicina de la Universidad Nacional de Loja (UNL). Loja, Ecuador.
Palabras clave: Level of burden, Caregivers, Severely disabled person, Social Work

Resumen

The present study was carried out for the purpose of determining the levels of load that the carers of persons with severe disabilities have, based on a design of bibliographical or documentary study, with the participation of the population under study, comprised of thirty carers of persons with severe disabilities. For which, the Questionnaire on the burden of the Zarit caregiver was applied to them, giving as results that 60% of the total of the surveyed sample present overload, where 36.67% experience an intense overload and 23.33% a slight overload. Therefore, it was determined that the overload in the caregiver is due to many significant factors, such as not having the support of other family members in the care of the person with severe disability, difficulty in reconciling care with household tasks, family and economic problems, thoughts about the future of their family member, circumstances that over time become stressful causing alterations in the emotional well-being of the caregiver.

Keywords: Level of burden, Caregivers, Severely disabled person, Social Work.

RESUMEN:

El presente estudio se lo ejecutó con la finalidad de determinar los niveles de carga que tienen los cuidadores y cuidadoras de personas con discapacidad severa, basándose en un diseño de estudio bibliográfico o documental, contando con la participación de la población objeto de estudio conformada por treinta cuidadores y cuidadoras de personas con discapacidad severa. Para lo cual, se les aplicó el Cuestionario de carga del cuidador de Zarit, arrojando como resultados que el 60% del total de la muestra encuestada presentan sobrecarga, donde el 36,67% experimenta una sobrecarga intensa y el 23,33% sobrecarga leve. Por lo tanto, se determinó que la sobrecarga en el cuidador o cuidadora se debe a muchos factores significativos, como por ejemplo, no contar con  el apoyo de otros familiares en el cuidado de la persona con discapacidad severa, dificultad al momento de compatibilizar el cuidado con las tareas del hogar, problemas familiares y económicos, pensamientos en torno al futuro de su familiar, circunstancias que con el paso del tiempo se convierten en estresores causando alteraciones en el bienestar emocional del cuidador.

Palabras Clave: Nivel de carga, Cuidadores, Persona con discapacidad severa, Trabajo Social.

Recibido: 28 de septiembre de 2020; Aceptado: 04 de enero de 2021; Publicado: 08 de enero de 2021.

Descargas

La descarga de datos todavía no está disponible.

Citas

Álvarez, M., & Morales, J. M. (Eds.). (2007). Guide for caregivers of dependent persons. Volume 1. Málaga: Andalusian Association of Community Nurses. Retrieved from https://bit.ly/3ni8KBs

Arrieta, E. (2017). How stress affects the caregiver. Caregiver Overload (I) [Blog post]. Retrieved from https://bit.ly/3nkBPvX

National Council on Disability Equality. (2020). Disability statistics. Ecuador. Retrieved from: https://bit.ly/3jEG43m

De Lorenzo, R. (2014). Disability, protection systems and Social Work. Spain: Alianza Editorial.

Gómez, A., Peñas, O., & Parra, E. (2016). Characterization and conditions of caregivers of severely disabled people in Bogotá. Public Health, 18(3), 367-378. Retrieved from http://dx.doi.org/10.15446/rsap.v18n3.53048

Gutiérrez, L., Martínez, J. M., & Rodríguez, F. D. (2013). Caregiver overload in bipolar disorder. Annals of Psychology, 29(2), 624-632. Retrieved from https://bit.ly/33AqcsU

Organic Law on Disabilities No. 796. (2012). Retrieved from https://bit.ly/3iw4Wcl

Lopez, M., Wens, J., Verhoeven, V., & Remmen, R. (2012). The effect of caregiver support interventions for informal caregivers of community-dwelling frail elderly: A systematic review. International Journal of Integrated Care, 12 (5), 1-16. Retrieved from https://doi.org/10.5334/ijic.845

Lorna, S. (2014). Social Work in the area of disability: specificities of the professional role. XXVII National Congress of T.S. "Social Work and Human Rights, bets of the professional exercise in the contemporaneity". Congress conducted by the Argentine Federation of Professional Associations of Social Service (FAAPSS).

Mendoza, G. E. (2015). Syndrome of overload in family caregivers of patients with chronic neurological disease. Hospital San Juan de Lurigancho 2011-2012 (Postgraduate thesis, Universidad Nacional Mayor de San Marcos, Lima, Peru). Retrieved from https://bit.ly/34u3NwU

Publicado
2021-01-08
Cómo citar
Rodríguez-Delgado, Y., Reyes-Masa, B. del C., & Carrión-Berrú, C. (2021). Level of burden on the caregivers of people with severe disabilities. Revista Científica Y Arbitrada De Ciencias Sociales Y Trabajo Social: Tejedora. ISSN: 2697-3626, 4(7), 116-127. Recuperado a partir de https://publicacionescd.uleam.edu.ec/index.php/tejedora/article/view/219